This morning I got a call from the Transplant Coordinator. As usual, she seemed in a rush and spoke to me much like she would if she was leaving me voicemail. Apparently, she was just calling to let me know that my second 24-Hour collection was fine.
That's good to know. Now the only thing standing between me and surgery is my girl exam and pap smear next Monday. This would be the perfect point for me to find out I have a lump in my breast or cervical cancer or something.
Assuming, my girl parts are all clear... we'll be ready to go with the surgery on the 25th of October. I got a letter from the Abdominal Organ Transplant office yesterday with the details:
Dear Amanda:
This letter will outline the events leading up to your kidney donation on 10/25/06 at 9:15 AM. You will be admitted the day of surgery; report to the Ambulatory Care Unit (ACU), on the third floor of the hospital at 6:00 AM.
- Arrive at Tenetcare on 10/19/06 at Noon for preadmission testing; labs including a final crossmatch, Chest X-Ray, and EKG.
- Transplant Clinic Visit at the Doctors Office Building (DOB) is scheduled for 10/19/06 at 2:00 PM. Register by the Pharmacy on the first floor of the DOB, the go to Room 108 to be seen by the transplant surgery team.
- The day before surgery, 10/24/06, you will require a bowel preparation. Ask for a prescription for Go Litely while you are at the clinic.
- After Midnight prior to your surgery have nothing to eat or drink.
- Before arriving at the hospital the morning of surgery, shampoo your hair and shower using antibacterial liquid soap such as Dial. Be sure to scrub your abdomen, chest and back well. After showering, do not use any deodorants, lotions, perfumes, or powders.
- On 10/25/06 bring the following items with you: insurance card and medications. Do NOT bring valuables such as money, credit cards, jewelry, etc.
If you have any questions, please call the office....
Up until this point, this surgery has been so unreal to me. But when someone starts telling you to shampoo and shower with Dial antibacterial liquid soap... you know you're in trouble.
Wednesday, September 27, 2006
Part Twenty Two: Big To Do
Checklist of Things to Do
1.Order Living Will and Durable Power of Attorney
2.Make appointment for Exam and Pap Smear
3.Tell Part-Time Boss about Potential Kidney Donation
A week or so ago, I was lamenting about the stress of having to tell my part-time employer about the kidney donation and time needed off work. My older brother remarked that Organ Donation was shown to be one of the hardest things to approach your boss about... second only to asking your boss for a raise.
I sensed a bit of sarcasm in my brother's voice at the time and laughed at his little statistic. But really, I'm starting to think that it could totally be true.
Part of it is just me and part of it is just the situation.
I've always been bad about telling people things potentially unnerving things... especially when I wait too long to do it.
And then you add that to the fact that I applied for this job after I was more than halfway through the donor evaluation process. I already knew there was a good chance that I could be donating. But I didn't mention it to my boss because I didn't want it to affect his decision for hiring me. And now that this donation is becoming more and more of a reality, I am starting to feel dishonest for keeping it from him.
Either way, I've gotta tell him soon. Although I'm just working part time, he is giving me more and more responsibility. With the upcoming holiday season, I don't want to leave him in a bind.
I think today is going to be the day, kids. Stay tuned for an update.
UPDATE
I did it! I did it! I did it!
I was trying to work up the courage to call my boss and staring blankly at the computer screen. I went to a kidney donor website and read some experiences from living donors. Those things are always so encouraging. I like to read how much better off the recipients are after the transplant and how the donors always say that it was totally worth it. After scanning a few pages of these I remembered how much I really want to do this for my dad. I picked up the phone... dialed the store number... and got the ANSWERING MACHINE! *grumble*
My boss called back a few minutes later and I gave him the news.
It's funny how sometimes you don't realize how much something is weighing on you until you get it off your chest.
As one probably could have expected, my boss was incredibly understanding. After listening to me rambling on about the surgery, he began by commending me for doing this for my dad. He told me that it shouldn't be a problem, that I've been doing an incredible job in the short time that I've been there, and that he is more than willing to work with me on this if I am willing to stay on.
I'm glad to get that over with... It was really one of the last big hurdles for me. Now we can begin our countdown to D-Day with everybody on board!
1.
2.
3.
A week or so ago, I was lamenting about the stress of having to tell my part-time employer about the kidney donation and time needed off work. My older brother remarked that Organ Donation was shown to be one of the hardest things to approach your boss about... second only to asking your boss for a raise.
I sensed a bit of sarcasm in my brother's voice at the time and laughed at his little statistic. But really, I'm starting to think that it could totally be true.
Part of it is just me and part of it is just the situation.
I've always been bad about telling people things potentially unnerving things... especially when I wait too long to do it.
And then you add that to the fact that I applied for this job after I was more than halfway through the donor evaluation process. I already knew there was a good chance that I could be donating. But I didn't mention it to my boss because I didn't want it to affect his decision for hiring me. And now that this donation is becoming more and more of a reality, I am starting to feel dishonest for keeping it from him.
Either way, I've gotta tell him soon. Although I'm just working part time, he is giving me more and more responsibility. With the upcoming holiday season, I don't want to leave him in a bind.
I think today is going to be the day, kids. Stay tuned for an update.
UPDATE
I did it! I did it! I did it!
I was trying to work up the courage to call my boss and staring blankly at the computer screen. I went to a kidney donor website and read some experiences from living donors. Those things are always so encouraging. I like to read how much better off the recipients are after the transplant and how the donors always say that it was totally worth it. After scanning a few pages of these I remembered how much I really want to do this for my dad. I picked up the phone... dialed the store number... and got the ANSWERING MACHINE! *grumble*
My boss called back a few minutes later and I gave him the news.
It's funny how sometimes you don't realize how much something is weighing on you until you get it off your chest.
As one probably could have expected, my boss was incredibly understanding. After listening to me rambling on about the surgery, he began by commending me for doing this for my dad. He told me that it shouldn't be a problem, that I've been doing an incredible job in the short time that I've been there, and that he is more than willing to work with me on this if I am willing to stay on.
I'm glad to get that over with... It was really one of the last big hurdles for me. Now we can begin our countdown to D-Day with everybody on board!
Tuesday, September 26, 2006
Part Twenty One: A Few More Weeks
This morning I got up, finished my 24-hour collection and then made my way over to the outpatient office to make the drop-off. It is days like this that I am grateful for living only a mile or so from the hospital.
At this point, all of the front desk people recognize me. They still have to go through the long drawn out process of "registering" me every time I go in. They ask me what my dad's birthday is... is he still working full time... am I the donor or the recipient. I have become somewhat frustrated with their crappy records system and hope that most of the problems that I have been having are related to the fact that my records seem to be kept under my dad's name.
In order to bill the charges to my dad's insurance, they have to put me in through his records. I'd like to think that if I were an actual patient, they wouldn't need to ask me the same questions over and over and over again. But who knows...
As usual, I was registered right away and only had a thirty second wait before my favorite blood sucking nurse came down the hall to get me. (I tried to pay attention to her name today... I think it was Krista.) At this point, I knew the routine pretty well. She handed me a cup and a disinfecting wipe for my private parts. I provided a glorious urine sample. She stuck my arm, drew a little blood, and I was out the door.
The next time I will see her will be a couple of days before the surgery. My dad and I will have to go in and have more bloodwork and EKGs and chest x-rays and stuff done to make sure we're still okay for surgery.
As I left, she said... "See you in a few weeks."
That was kind of scary.
At this point, all of the front desk people recognize me. They still have to go through the long drawn out process of "registering" me every time I go in. They ask me what my dad's birthday is... is he still working full time... am I the donor or the recipient. I have become somewhat frustrated with their crappy records system and hope that most of the problems that I have been having are related to the fact that my records seem to be kept under my dad's name.
In order to bill the charges to my dad's insurance, they have to put me in through his records. I'd like to think that if I were an actual patient, they wouldn't need to ask me the same questions over and over and over again. But who knows...
As usual, I was registered right away and only had a thirty second wait before my favorite blood sucking nurse came down the hall to get me. (I tried to pay attention to her name today... I think it was Krista.) At this point, I knew the routine pretty well. She handed me a cup and a disinfecting wipe for my private parts. I provided a glorious urine sample. She stuck my arm, drew a little blood, and I was out the door.
The next time I will see her will be a couple of days before the surgery. My dad and I will have to go in and have more bloodwork and EKGs and chest x-rays and stuff done to make sure we're still okay for surgery.
As I left, she said... "See you in a few weeks."
That was kind of scary.
Monday, September 25, 2006
Part Twenty: Suck Me Dry
The coordinator seems to be anxious for me to get that second 24-Hour Urine Collection done, so I decided that today would be the day. I do have to work this afternoon for 5 hours, but I'm hoping by some miracle that I won't have to pee while I'm at work. Just in case, I'll throw my jug in the car... but how embarassing! ("Don't mind me boss... just going in back to collect a little urine. Do you mind if I set my jug here on the counter?")
Meanwhile, I also had to schedule an in-home physical for the purposes of my life insurance policy. It was supposed to have been done a few weeks ago, but there was a mix up with scheduling. My insurance agent has been pulling his hair out trying to get me in touch with the traveling nurse for an appointment. So finally I was able to schedule the physical for this morning.
At some point I realized that I would need to provide a urine sample for the physical. Not normally a problem... except when you're supposed to be collecting a giant jug of urine for other purposes.
So here was the plan:
The 24-Hour test requires that you flush your first pee of the day, so that you can start the test with an empty bladder. Well, instead of going to the bathroom right away when I got up, I saved my pee for the physical sample... emptied my bladder and marked that time as the beginning of my 24-hour test.
*shooo*
In addition to peeing for the physical, I also had to give a few tubes of blood. The nurse had little luck with my left arm and had to redo it on the right one. I was trying to avoid my right arm, because I still have a big ol' bruise from my last trip to the outpatient office.
In my previous 27 years of life, I had only had blood drawn once. Now, in the past couple of months I've been getting stuck left and right. Between the pee and the blood (and the kidney)... I think they're gonna suck me dry.
Meanwhile, I also had to schedule an in-home physical for the purposes of my life insurance policy. It was supposed to have been done a few weeks ago, but there was a mix up with scheduling. My insurance agent has been pulling his hair out trying to get me in touch with the traveling nurse for an appointment. So finally I was able to schedule the physical for this morning.
At some point I realized that I would need to provide a urine sample for the physical. Not normally a problem... except when you're supposed to be collecting a giant jug of urine for other purposes.
So here was the plan:
The 24-Hour test requires that you flush your first pee of the day, so that you can start the test with an empty bladder. Well, instead of going to the bathroom right away when I got up, I saved my pee for the physical sample... emptied my bladder and marked that time as the beginning of my 24-hour test.
*shooo*
In addition to peeing for the physical, I also had to give a few tubes of blood. The nurse had little luck with my left arm and had to redo it on the right one. I was trying to avoid my right arm, because I still have a big ol' bruise from my last trip to the outpatient office.
In my previous 27 years of life, I had only had blood drawn once. Now, in the past couple of months I've been getting stuck left and right. Between the pee and the blood (and the kidney)... I think they're gonna suck me dry.
Thursday, September 21, 2006
Part Nineteen: No Pee For You!
WARNING: POTENTIALLY GROSS POST
I am off work today and I'd originally planned on completing my second 24-Hour urine collection while I was lazing about the house. These plans were derailed earlier in the week by a visit from Aunt Flo.
As if collecting your urine wasn't gross enough... just imagine trying to do it while menstruating! Blech!
While the doctors had never warned against it, I just kind of assumed that this wouldn't really be the best urine sample to turn in. A quick internet search of guidelines for timed urine collections revealed that you should Avoid getting toilet paper, pubic hair, stool (feces), menstrual blood, or other foreign matter in the urine sample.
Okay... so that's that. Maybe later.
P.S. See! Aren't we all glad that I fished that cat hair out of the previous sample? I knew they wouldn't like that. *grin*
I am off work today and I'd originally planned on completing my second 24-Hour urine collection while I was lazing about the house. These plans were derailed earlier in the week by a visit from Aunt Flo.
As if collecting your urine wasn't gross enough... just imagine trying to do it while menstruating! Blech!
While the doctors had never warned against it, I just kind of assumed that this wouldn't really be the best urine sample to turn in. A quick internet search of guidelines for timed urine collections revealed that you should Avoid getting toilet paper, pubic hair, stool (feces), menstrual blood, or other foreign matter in the urine sample.
Okay... so that's that. Maybe later.
P.S. See! Aren't we all glad that I fished that cat hair out of the previous sample? I knew they wouldn't like that. *grin*
Monday, September 18, 2006
Part Eighteen: It's GO Time!
GUESS WHO'S GONNA BE A KIDNEY DONOR!?!?!
The kidney transplant coordinator called this morning with the results of my CT scan and to ask a few questions that the hurried kidney doctor neglected to ask.
First of all, I guess the CT scan looked good. The coordinator didn't get into specifics, but I'm assuming I have the appropriate number of kidneys and the usual vein configuration. She said everything looked "normal" and "wonderful".
In her rush, the kidney doctor forgot to ask whether or not my mom was living and healthy, whether or not I had siblings (and if they were healthy), and if any of my family had high blood pressure.
I'm never very good about family history questions. I said there was probably a good chance one or more of my grandparents had high blood pressure... that my mom didn't as far as I knew... and that my brothers were still quite young and had not shown any signs of high blood pressure.
I confirmed that the kidney doctor had given me orders for another creatinine clearance test, that I would be doing the urine collection on Thursday since I was off work that day, and that I would be dropping that off Friday morning. I will also be doing the other smaller urine collection at the office to make up for the "contaminated" sample that I gave on Friday.
The coordinator reminded me that I still needed to have a Pap Smear done before the transplant... and advised that I allow at least a week for the results to come back.
Then she was like, "Okay, when do you want to schedule the transplant for?"
And I was like... "Uhhh...."
She offered a number of dates, "October 11th, 18th, 25th..."
They all seemed sooo soon. I wasn't imagining that it could happen so soon and I was by no means prepared to schedule the transplant.
I said something like, "Well, I don't know what's going on with my dad..."
And she laughed at me. She told me that I was the "main player" and that I was the one who should decide when I wanted to do this.
One of my best friends is getting married in Texas on October 21st... so I picked the 25th as the transplant date. The coordinator seemed anxious to lock in a date and that will give my dad time to get his affairs in order.
Crazy.
The kidney transplant coordinator called this morning with the results of my CT scan and to ask a few questions that the hurried kidney doctor neglected to ask.
First of all, I guess the CT scan looked good. The coordinator didn't get into specifics, but I'm assuming I have the appropriate number of kidneys and the usual vein configuration. She said everything looked "normal" and "wonderful".
In her rush, the kidney doctor forgot to ask whether or not my mom was living and healthy, whether or not I had siblings (and if they were healthy), and if any of my family had high blood pressure.
I'm never very good about family history questions. I said there was probably a good chance one or more of my grandparents had high blood pressure... that my mom didn't as far as I knew... and that my brothers were still quite young and had not shown any signs of high blood pressure.
I confirmed that the kidney doctor had given me orders for another creatinine clearance test, that I would be doing the urine collection on Thursday since I was off work that day, and that I would be dropping that off Friday morning. I will also be doing the other smaller urine collection at the office to make up for the "contaminated" sample that I gave on Friday.
The coordinator reminded me that I still needed to have a Pap Smear done before the transplant... and advised that I allow at least a week for the results to come back.
Then she was like, "Okay, when do you want to schedule the transplant for?"
And I was like... "Uhhh...."
She offered a number of dates, "October 11th, 18th, 25th..."
They all seemed sooo soon. I wasn't imagining that it could happen so soon and I was by no means prepared to schedule the transplant.
I said something like, "Well, I don't know what's going on with my dad..."
And she laughed at me. She told me that I was the "main player" and that I was the one who should decide when I wanted to do this.
One of my best friends is getting married in Texas on October 21st... so I picked the 25th as the transplant date. The coordinator seemed anxious to lock in a date and that will give my dad time to get his affairs in order.
Crazy.
Friday, September 15, 2006
Part Seventeen: Hot Flashes
The morning of my final tests started out well, except that I was a little grumpy at the prospect of not eating or drinking until after all of my tests were over.
I made it over the outpatient building promptly at 9 and was whisked through registration and back to the familiar pistachio-green-adult-high-chair and my favorite blood-sucking nurse. I wasn't really sure what lab work needed to be done and was surprised when the nurse stuck me, drew a little blood, and declared me finished. She directed me over to the Doctor's Office Building where I was more than a half hour early for my visit with the doctor.
The DOB seemed pretty nice and fairly efficient at first. When I walked in I was asked to enter my name into a computer and a few seconds later my name was called to be registered again for my next appointment. Then I was pointed down the hall to the Nephrology waiting room, which would become my home for the next two and a half hours.
Now, granted, I was there a half hour early for my appointment... but 10 came.... then 10:15... then 10:30... then 11:00. At that point I was starting to get the Jimmy Leg and was very frustrated that so many people had cycled in and out of the doctors office before my name was called. Fortunately, my mom drove up to St. Louis to accompany me for my tests. This meant that I didn't have to wait alone... but it also meant I had someone who would join me in getting angry when it took so long.
While we were waiting, my little brother called my mom. He passed along a message for me...
"Don't be too worried about the CT scan, I'll be thinking about you today."
At some point after 11:15, a nurse finally came and got me... asked me for a urine sample, weighed me and took my blood pressure. She then put me in a room where I was to wait for a few more minutes. Ten minutes later someone knocked on the door but it wasn't the doctor... instead it was another nurse informing me that I would have to go back out into the waiting room and wait some more. Another ten minutes passed and I was called back in... this time to wait in a makeshift exam room that appeared to be more of a storage area for medical equipment. At this point I was so tired of sitting and waiting that I got up and wandered about the room. Eventually, the doctor came in looking very hurried.
She rushed through the paperwork and questions... asking things that she should already know... like why my dad's kidneys failed (Like I know), how long had he been on dialysis (I could only give a guess), and did I still live with my folks... to which I answered, "No. I don't live with my parents. If I did, I would probably be more capable of answering all of your questions."
She also asked me a bunch of questions about my own health which I've already answered a few times before. Then she told me that the urine sample I gave today had something wrong with it... something to do with white blood cells, which could indicate infection. But she acknowledged that it could be contamination from the vagina (I have been feeling a tad itchy down there lately) and that I could redo that sample later.
She also asked me some questions about the 24-hour urine collection I had turned in before. She was curious as to whether or not I was sure that I got all of the urine for that period. Except for the few drops that got lost when I fished out the cat hair, I was pretty sure that I had. She then told me her reason for concern... apparently something to do with my creatinine levels were slightly inconsistent for my age and weight or whatever. She said they fell within the range of deviation and were probably fine, but just wanted me to do another 24-hour urine collection to make sure. Then she signed off on my CT scan (which I was now late for), and sent me on my way.
My mom and I trudged back to the outpatient building and then were escorted up to the CT area with my favorite blood-sucking nurse. After a short wait, I was greeting by the friendly gentleman who would be administering the CT scan. He had me go to the bathroom to empty my bladder. Then I went into the room with the machine which looked like a giant donut. For some reason it made me think of Homer Simpson.
"Mmmmm... Donut."
I was instructed to lay down on the table with my feet hanging off the edge. The guy brought super warm blankets to place on me and they were all comfy like they were straight out of the dryer. Then he told me that I should reach under the blanket and pull my "britches" down to my knees so that they wouldn't interfere with the scan. I was able to keep my underwear on.
Then another guy came in to put an IV in me for the dye. I've never had an IV before and it was kind of weird. It hurt a little bit when he stuck it in me and then I had a salty taste in my mouth which the IV man said was from the saline. The two of them gave me the lowdown on the stuff they were going to inject into me. I was told that I would get a metallic taste in my mouth, that it would make me feel like I was having a hot flash, and that I might also feel like I was wetting myself... but not to worry because I really wasn't.
Then they said that I would probably need to go to the bathroom right after to help get the stuff out of my system.
After the IV was in, I had to put both arms above my head and they ran me back and forth through the donut a few times. I was kind of concerned because I didn't feel hot or a metallic taste or like I had to pee.
Then the guy came back out and said that he was going to start the IV now... which probably explained why I wasn't experiencing any of the side effects yet. So he started it and first I felt a tickle in my throat and then I just felt awful. I can't even explain it... the taste wasn't so bad. It was the heat... ugh... so frickin' hot all over my body... just burning like I was on fire... and I was cursing myself for wearing smart-wool socks today... and cursing the guy for putting those dryer-hot blankets on me. My feet were so hot and my crotch felt funny too. I don't know if I'd liken it to the feeling of wetting oneself... but it was definitely different. This whole experience didn't last very long... thirty seconds, maybe a minute at most. All the while I was having to breath in and hold my breath as I was passed in and out of the giant donut. Then the guy rushed out and took out my IV and the feeling went away. Blech.
After a five minute delay, he passed me through the machine a few more times and then we were done. Altogether it probably only took ten minutes and then I was out of there.
The guy told me five times to make sure to pee, so I did as soon as I left, afraid something awful might happen. Then my mom and I stopped at the outpatient office again to pick up the supplies for my second 24-hour urine collection. This time I got an official container and a little hat to pee into, which really does look like a hat.
I'm not sure when I'll hear the final results from these tests but judging from the previous ones it will probably be a few days. Before I can go any further, I will have to do the next pee collection and also have a gynecological exam and a pap smear at some point.
If all this works out, we're looking at maybe the beginning of November for the transplant. *sigh*
I made it over the outpatient building promptly at 9 and was whisked through registration and back to the familiar pistachio-green-adult-high-chair and my favorite blood-sucking nurse. I wasn't really sure what lab work needed to be done and was surprised when the nurse stuck me, drew a little blood, and declared me finished. She directed me over to the Doctor's Office Building where I was more than a half hour early for my visit with the doctor.
The DOB seemed pretty nice and fairly efficient at first. When I walked in I was asked to enter my name into a computer and a few seconds later my name was called to be registered again for my next appointment. Then I was pointed down the hall to the Nephrology waiting room, which would become my home for the next two and a half hours.
Now, granted, I was there a half hour early for my appointment... but 10 came.... then 10:15... then 10:30... then 11:00. At that point I was starting to get the Jimmy Leg and was very frustrated that so many people had cycled in and out of the doctors office before my name was called. Fortunately, my mom drove up to St. Louis to accompany me for my tests. This meant that I didn't have to wait alone... but it also meant I had someone who would join me in getting angry when it took so long.
While we were waiting, my little brother called my mom. He passed along a message for me...
"Don't be too worried about the CT scan, I'll be thinking about you today."
At some point after 11:15, a nurse finally came and got me... asked me for a urine sample, weighed me and took my blood pressure. She then put me in a room where I was to wait for a few more minutes. Ten minutes later someone knocked on the door but it wasn't the doctor... instead it was another nurse informing me that I would have to go back out into the waiting room and wait some more. Another ten minutes passed and I was called back in... this time to wait in a makeshift exam room that appeared to be more of a storage area for medical equipment. At this point I was so tired of sitting and waiting that I got up and wandered about the room. Eventually, the doctor came in looking very hurried.
She rushed through the paperwork and questions... asking things that she should already know... like why my dad's kidneys failed (Like I know), how long had he been on dialysis (I could only give a guess), and did I still live with my folks... to which I answered, "No. I don't live with my parents. If I did, I would probably be more capable of answering all of your questions."
She also asked me a bunch of questions about my own health which I've already answered a few times before. Then she told me that the urine sample I gave today had something wrong with it... something to do with white blood cells, which could indicate infection. But she acknowledged that it could be contamination from the vagina (I have been feeling a tad itchy down there lately) and that I could redo that sample later.
She also asked me some questions about the 24-hour urine collection I had turned in before. She was curious as to whether or not I was sure that I got all of the urine for that period. Except for the few drops that got lost when I fished out the cat hair, I was pretty sure that I had. She then told me her reason for concern... apparently something to do with my creatinine levels were slightly inconsistent for my age and weight or whatever. She said they fell within the range of deviation and were probably fine, but just wanted me to do another 24-hour urine collection to make sure. Then she signed off on my CT scan (which I was now late for), and sent me on my way.
My mom and I trudged back to the outpatient building and then were escorted up to the CT area with my favorite blood-sucking nurse. After a short wait, I was greeting by the friendly gentleman who would be administering the CT scan. He had me go to the bathroom to empty my bladder. Then I went into the room with the machine which looked like a giant donut. For some reason it made me think of Homer Simpson.
"Mmmmm... Donut."
I was instructed to lay down on the table with my feet hanging off the edge. The guy brought super warm blankets to place on me and they were all comfy like they were straight out of the dryer. Then he told me that I should reach under the blanket and pull my "britches" down to my knees so that they wouldn't interfere with the scan. I was able to keep my underwear on.
Then another guy came in to put an IV in me for the dye. I've never had an IV before and it was kind of weird. It hurt a little bit when he stuck it in me and then I had a salty taste in my mouth which the IV man said was from the saline. The two of them gave me the lowdown on the stuff they were going to inject into me. I was told that I would get a metallic taste in my mouth, that it would make me feel like I was having a hot flash, and that I might also feel like I was wetting myself... but not to worry because I really wasn't.
Then they said that I would probably need to go to the bathroom right after to help get the stuff out of my system.
After the IV was in, I had to put both arms above my head and they ran me back and forth through the donut a few times. I was kind of concerned because I didn't feel hot or a metallic taste or like I had to pee.
Then the guy came back out and said that he was going to start the IV now... which probably explained why I wasn't experiencing any of the side effects yet. So he started it and first I felt a tickle in my throat and then I just felt awful. I can't even explain it... the taste wasn't so bad. It was the heat... ugh... so frickin' hot all over my body... just burning like I was on fire... and I was cursing myself for wearing smart-wool socks today... and cursing the guy for putting those dryer-hot blankets on me. My feet were so hot and my crotch felt funny too. I don't know if I'd liken it to the feeling of wetting oneself... but it was definitely different. This whole experience didn't last very long... thirty seconds, maybe a minute at most. All the while I was having to breath in and hold my breath as I was passed in and out of the giant donut. Then the guy rushed out and took out my IV and the feeling went away. Blech.
After a five minute delay, he passed me through the machine a few more times and then we were done. Altogether it probably only took ten minutes and then I was out of there.
The guy told me five times to make sure to pee, so I did as soon as I left, afraid something awful might happen. Then my mom and I stopped at the outpatient office again to pick up the supplies for my second 24-hour urine collection. This time I got an official container and a little hat to pee into, which really does look like a hat.
I'm not sure when I'll hear the final results from these tests but judging from the previous ones it will probably be a few days. Before I can go any further, I will have to do the next pee collection and also have a gynecological exam and a pap smear at some point.
If all this works out, we're looking at maybe the beginning of November for the transplant. *sigh*
Wednesday, September 13, 2006
Part Sixteen: We've Gotta Stop Meeting Like This
Monday morning I got a call from my mom informing me that they were in town... at the hospital.
Apparently, on the way to church Sunday, my Dad noticed a small wet spot on his dress shirt near where his dialysis "port" is. As the day went on, the spot grew larger and larger... until the front his shirt was almost completely soaked. It was obvious that he was somehow leaking out of his port area. Not good.
As I've mentioned before, my dad does Peritoneal Dialysis at home every night. This differs from hemodialysis, which is the more common type of dialysis. With hemodialysis, your blood is circulated through a machine with a filter which removes all of the bad stuff. Then the clean blood goes back into your body.
With PD, a big bag of dialysis solution is put into the body through a catheter that is permanently fixed into your abdominal cavity. The solution contains dextrose which pulls waste products and extra fluid into the cavity. The solution stays in your body for a while and then is drained out (along with all the bad stuff).
Because there is a catheter that goes into my dad's stomach, he has to be extra careful about getting infections. You can imagine how frightening it might be to find out you have a crack in your tube. Because if stuff can come out, that means stuff can also go in.
My dad called up his kidney doctor who advised he go to the emergency room. The ER people scratched their heads and he eventually got admitted late late Sunday night/Monday morning. They did a CAT scan to make sure that his catheter was not damaged on the inside. Then they attempted to repair the outer portion of his tube which had a small crack in it.
Throughout the day Monday and Tuesday, the checked my dad for infection and loaded him up on antibiotics. They're still not sure if the tube repair solved the problem... but for the time being, my dad is grateful that he doesn't have to have the catheter completely replaced.
Replacement would require surgery and missing 2-3 weeks of work. With the prospect of getting a new kidney soon (thereby negating any need for a dialysis catheter), my dad is hesitant to have a brand new catheter installed unless absolutely necessary.
He was let out of the hospital Tuesday afternoon and the last I heard, was trying to get in to the dentist while he was in town. He has to get a few fillings before he can get the kidney transplant. I guess they want his teeth taken care of to help minimize the risk of infections during the transplant.
Just a few more days now until my final tests and meeting with the Kidney Doctor. My dad said he had spoken to one of the coordinators, who indicated that it could be another 4-6 weeks after I finish testing before the transplant could be scheduled. That puts us somewhere around the end of October or beginning of November.
Hopefully on Friday I wont find out that I only have one kidney.
Apparently, on the way to church Sunday, my Dad noticed a small wet spot on his dress shirt near where his dialysis "port" is. As the day went on, the spot grew larger and larger... until the front his shirt was almost completely soaked. It was obvious that he was somehow leaking out of his port area. Not good.
As I've mentioned before, my dad does Peritoneal Dialysis at home every night. This differs from hemodialysis, which is the more common type of dialysis. With hemodialysis, your blood is circulated through a machine with a filter which removes all of the bad stuff. Then the clean blood goes back into your body.
With PD, a big bag of dialysis solution is put into the body through a catheter that is permanently fixed into your abdominal cavity. The solution contains dextrose which pulls waste products and extra fluid into the cavity. The solution stays in your body for a while and then is drained out (along with all the bad stuff).
Because there is a catheter that goes into my dad's stomach, he has to be extra careful about getting infections. You can imagine how frightening it might be to find out you have a crack in your tube. Because if stuff can come out, that means stuff can also go in.
My dad called up his kidney doctor who advised he go to the emergency room. The ER people scratched their heads and he eventually got admitted late late Sunday night/Monday morning. They did a CAT scan to make sure that his catheter was not damaged on the inside. Then they attempted to repair the outer portion of his tube which had a small crack in it.
Throughout the day Monday and Tuesday, the checked my dad for infection and loaded him up on antibiotics. They're still not sure if the tube repair solved the problem... but for the time being, my dad is grateful that he doesn't have to have the catheter completely replaced.
Replacement would require surgery and missing 2-3 weeks of work. With the prospect of getting a new kidney soon (thereby negating any need for a dialysis catheter), my dad is hesitant to have a brand new catheter installed unless absolutely necessary.
He was let out of the hospital Tuesday afternoon and the last I heard, was trying to get in to the dentist while he was in town. He has to get a few fillings before he can get the kidney transplant. I guess they want his teeth taken care of to help minimize the risk of infections during the transplant.
Just a few more days now until my final tests and meeting with the Kidney Doctor. My dad said he had spoken to one of the coordinators, who indicated that it could be another 4-6 weeks after I finish testing before the transplant could be scheduled. That puts us somewhere around the end of October or beginning of November.
Hopefully on Friday I wont find out that I only have one kidney.
Tuesday, September 05, 2006
Part Fifteen: Schedule of Appointments
At some point last week I received a schedule of my appointments for September 15th. It goes a little something like this:
9AM - Tenetcare - Register and lab work (in preparation for the CT angiogram).
10AM - Meet with Dr. at the Doctors Office Building
NOON - CT angiogram of the abdomen IF Dr. APPROVES YOU TO HAVE THE CT ANGIOGRAM. Do not eat or drink for 6 hours before the CT angiogram.
So for those of you who don't already know (and because I'm sooo super knowledgeable about these things), "CT (computed tomography) angiography (CTA) is an examination that uses x-rays to visualize blood flow in arterial and venous vessels throughout the body, from arteries serving the brain to those bringing blood to the lungs, kidneys, and arms and legs. CT combines the use of x-rays with computerized analysis of the images. Beams of x-rays are passed from a rotating device through the area of interest in the patient's body from several different angles to create cross-sectional images, which then are assembled by computer into a three-dimensional picture of the area being studied."
Okay.. I totally borrowed that from somewhere.
Here is more kidney specific information about the test from the donor packet I was given earlier:
"This final evaluation test tells us that you have two kidneys, shows us exactly where your kidneys and where the blood vessels that supply blood to the kidneys are located. Though most people have one artery and vein per kidney, about 20% of the population has more than one. This information is very important in determining which kidney to use from the donor. Very rarely, we may find that both kidneys have multiple arteries that may make the donor operation too risky for the donor, or the multiple arteries are so small that the chance of clotting in the recipient is so high that the surgeon does not feel that the surgery can be safely done. In this case, the donation cannot take place."
9AM - Tenetcare - Register and lab work (in preparation for the CT angiogram).
10AM - Meet with Dr. at the Doctors Office Building
NOON - CT angiogram of the abdomen IF Dr. APPROVES YOU TO HAVE THE CT ANGIOGRAM. Do not eat or drink for 6 hours before the CT angiogram.
So for those of you who don't already know (and because I'm sooo super knowledgeable about these things), "CT (computed tomography) angiography (CTA) is an examination that uses x-rays to visualize blood flow in arterial and venous vessels throughout the body, from arteries serving the brain to those bringing blood to the lungs, kidneys, and arms and legs. CT combines the use of x-rays with computerized analysis of the images. Beams of x-rays are passed from a rotating device through the area of interest in the patient's body from several different angles to create cross-sectional images, which then are assembled by computer into a three-dimensional picture of the area being studied."
Okay.. I totally borrowed that from somewhere.
Here is more kidney specific information about the test from the donor packet I was given earlier:
"This final evaluation test tells us that you have two kidneys, shows us exactly where your kidneys and where the blood vessels that supply blood to the kidneys are located. Though most people have one artery and vein per kidney, about 20% of the population has more than one. This information is very important in determining which kidney to use from the donor. Very rarely, we may find that both kidneys have multiple arteries that may make the donor operation too risky for the donor, or the multiple arteries are so small that the chance of clotting in the recipient is so high that the surgeon does not feel that the surgery can be safely done. In this case, the donation cannot take place."
Monday, August 28, 2006
Part Fourteen: Do Do Do Do Do Do Do Do... CAT SCAN!
I got a hurried call from the kidney transplant coordinator this morning informing me that I was scheduled for my next test the morning of Friday, September 15th. Apparently that's the earliest they could get me in... but that's fine. It's just a couple of weeks away.
I'm supposed to be receiving a letter from the transplant office letting me know the details of the visit. Hooray!
I'm supposed to be receiving a letter from the transplant office letting me know the details of the visit. Hooray!
Subscribe to:
Posts (Atom)
